Posts tagged Lived/consumer experience
Participant, Facilitator, Clinician, Researcher: Reflecting on personal and professional experiences of co-production at the outset of researching co-production in youth mental health.

My first experiences of co-production were in the national youth charity Woodcraft Folk (WCF). An organisation founded on principles of co-operation and youth empowerment whose trustee board has included a majority of young people for more than 20 years [1] [2] [3]. From joining, age 8, I was given responsibilities which contributed to collective aims. Co-producing events and campaigns with my peers in the self-organising 16-20 year old section were formative experiences [4]. Age 22, I began working at the head office as a youth empowerment development officer. My role was to support a steering group of young(er) people to run leadership training, improve representation in the organisation, and to have fun (allegedly then the only big lottery funded youth programme using ‘fun’ as an outcome measure!). Of course, it wasn’t perfect co-production - the holy grail – but, in these roles I witnessed the ‘magic’ and ‘electricity’ often spoken about in relation to co-production.

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Summer reading from Power to Persuade / the Women’s Policy Action Tank

2022 saw a lot of movement in the policy space, including a change in the Federal government and the largest number of independent candidates elected to office. There are many policy-related issues that are currently in flux, as indicated by royal commissions, law suits, the question of Indigenous Voice to Parliament, responses to climate change, continued management of COVID-19 and the economic reset that it caused, inflation, reforming the safety net, and fundamental questions about how government governs and is held accountable.

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Stretching ourselves beyond reason to deliver government savings: a response to the Albanese’s first budget – part 3 

In the wake of the budget, the Antipoverty Centre asked people on Centrelink payments – the real social policy experts – for their reactions. A contributor shared how he and other carers performing unpaid labour save the government money, and another describes the devastating impact of the failure to raise the JobSeeker rate on welfare recipients.

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Welfare recipients feeling our government would prefer us dead: a response to the Albanese’s first budget – part 2 

In the wake of the budget, the Antipoverty Centre asked people on Centrelink payments – the real social policy experts – for their reactions. One said “This budget is democide. This is social murder. They cannot claim ignorance of the deaths that keeping the welfare rate below the poverty line will cause. A number of them have even said during parliament that the rate is far too low to survive on, but when it comes time to change it they chose not to.

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From welfare recipients to Labor without love: a response to the Albanese government’s first budget  - part 1

After the 2022 Federal Government budget, The Antipoverty Centre asked people on Centrelink payments – the real social policy experts – for their reactions. One example: “This budget is an exercise in austerity & cruelty for the poorest, most vulnerable Australians, but for the wealthiest Australians it's an exercise in government handouts.’

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Racial Justice: Local action is key 

Marcella Brassett from Democracy in Colour argues the national anti-racism strategy cannot be just another tick-a-box, saying “Black, Indigenous and People of Colour (BIPOC) have done our bit for diversity and inclusion ‘way out’ for white people with power. We need to act on every level to make Australia a safe place to live, work, build families and futures for everyone, not just Anglos.”

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The power of information in medication use for people living with severe mental illness

Globally 5% of people live with severe mental illness which includes schizophrenia, other psychotic disorders and bipolar disorder. Antipsychotic medication is the main treatment option and whilst helpful in controlling psychotic symptoms, they can cause debilitating side-effects. This may lead individuals to abruptly stop medication, without the knowledge of clinicians, which for many increases the likelihood of relapsing.

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Tackling wicked problems from the inside out

A diversity of perspectives, particularly from those with lived experiences of poverty and socio-economic disadvantage, is critical to strengthening public health research, policy and practice. In today’s analysis, Joelie Mandzufas (@jmzuf7) PhD candidate at Telethon Kids Institute (@telethonkids) at The University of Western Australia (@uwanews) highlights the need for complex social problems to be addressed ‘from the inside out’.

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Women’s financial security will be further eroded by weakening consumer credit protections

The Federal government has proposed changes to the National Consumer Credit Protection Act which will, it says, make credit more accessible to individuals and small businesses during the recovery period from COVID-19. However, these changes have been critiqued as a way to circumvent some of the recommendations from the Banking Royal Commission. In today’s analysis, Lily Gardener and Madeleine Ulbrick (@MaddyUlbrick), both of Good Shepherd Australia New Zealand (@GoodAdvocacy) summarise their submission commenting on the Amendment, detailing how such changes are likely to further disadvantage women who are still struggling from the pink recession.

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Pointless and punitive: why jobactive has to go

My experiences as a ‘job seeker’ reinforce the view that jobactive should be shut down. I chose the jobactive provider because I had heard its senior managers boasting about the skills of their staff. To keep things fair, I told the workers I met about my knowledge of employment services and that I was taking notes of every appointment. These notes were so I could check what they told me to do was technically correct in relation to the guidelines and Social Security Act. Here’s a short account of what happened in the 4 months I was job seeker.

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How is patient experience feedback used to improve the quality of adult inpatient mental health care in NHS England?

EURIPIDES is the short title for Evaluating the Use of Patient Experience Data to Improve the Quality of Inpatient Mental Health Care study. EURIPIDES aimed to understand which of the many different approaches to collecting and using patient experience data are the most useful for supporting improvements in inpatient mental health care.

Researchers from the EURIPIDES study team have made a series of recommendations for improving the way that NHS mental health trusts collect and use patient feedback to improve the quality of care for mental health inpatients. In this post, Dr Sarah-Jane Fenton summarises some of the key findings ahead of the full report being published in early 2020 as health research academics call for NHS to act on mental health patient feedback.

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The Renter's Journey: a new report from the Consumer Policy Research Centre

A new research report from the Consumer Policy Research Centre (CPRC) - The Renter's Journey - follows the common and differing rental experiences of the rental market of four key segments (young singles, women over 55, low income families, and migrant families) and makes recommendations to policymakers for change. The report will be launched in Melbourne on 25 February 2019.

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What’s in a name? Is ‘looking after myself’ the same as ‘self-management’?

Policy makers and service providers are looking to self-management, particularly of chronic illness, to maximise limited health resources. Despite increasing use of the term “self-management”, however, this terminology does not appear to resonate with consumers. Meg Polacsek, PhD candidate, considers whether policymakers should be using the same language as those who are affected most by their decisions.

 

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Asking the experts: Using the lived experience of older adults with depression to inform policy and practice

Older adults are highly motivated to participate in research and rate depression as a priority research topic. So why aren’t we involving them more in research and policy development? Meg Polacsek, PhD Candidate, Victoria University, considers the importance of engaging with these members of our community.

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